#DisruptForSickleCell

It’s nearly that time of year again. September. I will be hosting another Personal Independence Payment (PIP) workshop on the 8th September. My third year of doing this for the Sickle Cell community. There is still so little #awareness of Sickle Cell Disease (SCD) to the extend that welfare support for people living with the condition is almost nonexistent. In my small way, I started the PIP workshop three years ago to attempt to draw some attention to the common problems those living with #SCD encounter with PIP applications.

I like to call my workshops #DisruptForSickleCell simply because the status quo has not and won’t work for sickle cell so it is necessary to #Disrupt the process with a different approach. On the surface, PIP and SCD are miles apart when it comes to the descriptors used in the application process to award points, which then decides the outcome of a PIP application. I approach PIP from a perspective which narrows that gap considerably. Curious? Of course you are curious. If you are a sickle cell patient and you live in the London Boroughs of Lewisham, Southwark and Lambeth or you attend a Haematology Clinic at Guy’s and St Thomas’ NHS Foundation Trust, King’s College Hospital, or University Hospital Lewisham, then be super curious and come to one of my workshops.

I will post location details out soon. Definitely register and come along, especially if you are currently on Disability Living Allowance (DLA). PIP is the new benefit replacing DLA. Trust me, you need to know what PIP is all about.

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